Peggy Ennis has two interesting ways to describe dementia to those who know little about it. In the first she likens the inner wiring of the right side of the human brain to a set of fairy lights that are not performing at their peak. Some of the bulbs are dim, some are flickering. Others have packed up altogether. It all means we are no longer quite as bright or as flashy as we used to be.
In the second description Peggy uses the metaphor of the bookcase. Imagine, she says, a bookcase made of plywood. Each of its shelves are full of books; each of the shelves represents 10 years of your life; all of the books on each shelf are your memories of that decade. On the bottom shelf are your earliest memories, on the top are your most recent. Push the shelf slightly and it will sway; push it harder and the books on the top shelf will begin to fall off. More pushing and the books on the other shelves will do likewise, but the books on the bottom shelf (your long-term memories) will only fall off after an almighty shove. As you try desperately to put the falling books back on their shelves, many of them will get mixed up. In other words, you become confused. This is what dementia is like.
Now imagine a bookcase made from solid oak. The books on the top shelves might fall, but the stability of the unit will hold many of them in place, allowing the displaced books to be re-stacked on the shelves with some sense of order. This, Peggy says, illustrates the importance of “brain fitness”. Keep your brain exercised and nourished and the effects of dementia can be eased. She has a slogan for this exercise: “a healthy heart means a healthy head”. In other words, regular exercise keeps your mind in tip-top condition.
In the dementia awareness training Peggy delivered to a small group at St Luke’s Community Centre, she then spoke about the left side of the brain and the importance of the emotions. Quite often, she said, we will forget what people told us, what their names were, where we met them and what time they arrived. But we will remember how they made us feel, so using our emotional recollections rather than our factual ones is a good way to compensate once dementia and/or memory difficulties set in. Happy, sad, angry, disgusted, frightened or shocked: these are the experiences we can use to put those books back on the right shelf.
Peggy told us how people with dementia can appear a bit confused, bonkers even. To someone with dementia a polished vinyl floor might look like water; a black rubber slip-mat outside a supermarket door might look like a hole in the ground. This took me straight to a film idea, ‘Dementia Tour Of London’, a kind of funny/serious travelogue in which offspring and parent with early onset wander the capital’s streets seeing everything from a demented point of view.
